Rob Burrow's heartbroken wife says his MND brave battle 'will continue to inspire us' after she was rock by side of 'inspirational' rugby star before his death at 41 – as his 'last wish' for her to 'move on with someone else' is revealed

The determined, defiant and doting wife of Rob Burrow has said her husband’s life and battle with motor neurone disease shows that ‘we must dare to dream’ as she and their young family mourn his death today.

Lindsey Burrow had promised her former rugby league star husband before he died that her only focus would be caring for and protecting their three young children Macy, Maya and Jackson.

Rob defied the odds by living for five years with the debilitating illness when doctors said that he would only live for two years – and in that time he raised millions of pounds for MND research.

In a statement released last night after his death, his wife and children said: ‘Rob never accepted that he couldn’t do something. He just found his way of doing it better than anyone else. He will continue to inspire us all every day. In a world full of adversity. We must dare to dream’. 

Rob had always begged her to ‘find someone else’ when he died – but Lindsey, a NHS physiotherapist and his full time carer who met him when they were both 15, refused. She cried as she told the BBC in 2022: ‘He always says, find someone else. You’re young. But there won’t be anybody else. No one will take Rob’s place’.

Incredibly, and poignantly, work to build a new £6 million Rob Burrow Centre for Motor Neurone Disease in Leeds begins today – less than 24 hours after his death. 

Rob, who fell gravely ill early last week, had told staff on site at Seacroft Hospital in Leeds on Friday that work should begin immediately. Burrow’s friend Phil Daly said today: ‘We will have the groundbreaking today, that was Rob’s wishes. We spoke to Lindsey on Friday and that’s what he said. We can’t waste a day and Rob wouldn’t want us to waste a day, we start today.’

In a statement announcing he had died yesterday, his bereft family said: ‘Rob has always been a true inspiration throughout his life, whether that was on the Rugby League field or during his battle with MND. He never allowed others to define what he could achieve and believed in his own ability to do more. The outpouring of love and support that Rob and the whole Burrow family have received over the last four and a half years meant so much to Rob.’ 

Lindsey and Rob’s love story began when they were both 15. 

She said in a recent BBC documentary that there was never any doubt they would marry – even though her dad had urged her to marry someone tall. 

But she plumped for 5ft5ins Rob, and said they had the ‘perfect life’ together.

She said: ‘There was never going to be anyone else I was going to marry. I knew it from the start. He treated me like a princess. It was love at first sight. It can be a cliché but it was true for me’.

But after he fell ill, Rob begged her to consider looking for love after he died.

She said in the BBC documentary Rob Burrow: Living With MND: ‘He always says, find someone else. You’re young. But there won’t be anybody else. No one will take Rob’s place’.

Sobbing, she went on: ‘I like to plan. But it’s really difficult because Rob doesn’t like to talk about the future. It’s really difficult because you don’t want to upset him but I want to know what Rob wants and his wishes so we have had to have those difficult conversations. And I know what Rob wants but I try not to think about the end because I can’t imagine a world without Rob’.

Last night Rob’s best friend Kevin Sinfield called him: ‘The bravest man I have ever met’. 

Rugby league coach and former Leeds Rhinos player Jamie Jones-Buchanan said he went to fellow ex-player Kevin Sinfield’s house on Sunday and ‘knew from his face’ that their former team-mate Rob Burrow had died.

Mr Jones-Buchanan told the PA news agency: ‘I’d gone to pick something up, he’d found out about 45 minutes before. When I saw his face, I could tell.

‘He was struggling, really struggling… He’s an emotional guy is Kev.

‘The overwhelming thought for me was how important it was for me to spend those moments when I got back home with my wife and kids so I just turned my phone off

‘If Rob had another 30 seconds left, I doubt he’d pick up his phone. He’d spend it with Maya, Macy, Jackson and Lindsay, and I thought that’s what I need to do.’

Attending Headingley stadium on Tuesday morning to see the floral tributes, Mr Jones-Buchanan said Mr Burrow had ‘smashed’ expectations after being diagnosed with motor neurone disease.

He told PA: ‘Every moment was spent doing the right thing, shining a light on the people that needed it the most, and he transcended not just the sport but the nation, and he’s raised millions, he created so much awareness for motor neurone disease.

‘He never said ‘Why me?’, he never complained, he never moaned, very stoic. He fought every minute, he was so brave.’

The rugby player was diagnosed with the disease in 2019, just two years after retiring from a 17-season league career.

Burrow, a fan favourite, won eight Super League titles with Leeds but after being diagnosed with the illness, he dedicated himself to raising awareness and funds for the MND community.

He did so with the support of former Leeds teammate Sinfield, who later posted a touching tribute.

In a statement posted on X by the rugby league club, his grieving friend said: ‘Today was the day that I hoped would never come.

‘The world has lost a great man and a wonderful friend to so so many.

‘You fought so bravely until the end and became a beacon of hope and inspiration, not only for the MND (motor neurone disease) community but for all those who saw and heard your story.

‘My love and thoughts go to your beautiful family, Lindsey, Macy, Maya, and Jackson, to your lovely parents Geoff and Irene, sisters Joanne and Claire and your wider family and friends.

‘You will continue to inspire me every single day.

‘I have lost a dear friend and I will never forget the special times we shared both on and off the pitch.

‘I would always say that you were pound for pound the toughest player I ever played alongside, however since your diagnosis, you were the toughest and bravest man I have ever met.

‘The last four and a half years you showed the world what living and loving looked like and this was always done with the biggest smile on your face.

‘I will miss you my little mate. All my love, Kev X.’

Last year, Sinfield and Burrow made headlines after emotional scenes.

After being pushed around the 26-mile course of the Rob Burrow Leeds Marathon in a wheelchair, Burrow was carried the remainder in the arms of his former teammate.

The pair were clearly emotional as they crossed the finish line to huge cheers from the watching crowds.

Sinfield was photographed as he gave his former teammate a kiss of affection to mark the moment they crossed the line.

It comes after the Prince and Princess of Wales led the tributes to Burrow.

The official X account of Prince William and Princess Kate posted a touching message and expressed their condolences to the brave legend’s family.

The post read: ‘A legend of Rugby League, Rob Burrow had a huge heart.

‘He taught us, ‘in a world full of adversity, we must dare to dream’. Catherine and I send our love to Lindsey, Jackson, Maya and Macy.’ It was signed off with a W for William.

Heart-wrenching tributes have poured in for the ‘hero’ who ‘never allowed others to define what he could achieve’.

A statement on behalf of his family said he continues to ‘inspire us all every day,’ adding that ‘in a world full of adversity, we must dare to dream.’ 

Broadcaster Dan Walker posted on X to ‘send all my love’ to the grieving family and said the rugby legend ‘taught us all so much’ with his ‘continued determination and desire to make a difference for others’.

Presenter and ex-footballer Chris Kamara posted: ‘What a trooper Rob was. He fought a real battle with MND. 

‘Rob raised awareness and funds, despite his condition, for other people to benefit from. The impact he leaves will be long lasting. RIP Rob what a hero.’

Paying tribute, the MND Association said: ‘Our thoughts today are with Rob’s wife Lindsey, children Macy, Maya and Jackson, family and friends and the rugby community.

‘Rob, who played at number 7 for Leeds Rhinos, lived with this brutal disease in the public eye after choosing to announce his diagnosis shortly before Christmas 2019. 

‘He used every opportunity to raise awareness of the disease, speaking publicly, undertaking media interviews and opening his life up in two moving BBC documentaries My Year With MND and Rob Burrow: Living With MND.’

The charity called the rugby star a ‘consistent and passionate advocate’ in the touching statement.

A GoFundMe set up in his honour has reached an incredible £120,308 in donations – with the top being a generous £4,823.

The team fundraiser paid tribute to the ‘fearless and respected’ player who was a ‘tough competitor on the field’ and ‘gave his all for the team’.

A statement posted on behalf of his family read: ‘It is with deep sadness that we announce the death of our beloved son, husband, father, brother and friend.

‘Rob has always been a true inspiration throughout his life, whether that was on the Rugby league field or during his battle with MND.

‘He never allowed others to define what he could achieve and believed in his own ability to do more.

‘The outpouring of love and support that Rob and the whole Burrow family have received over the last four and a half years meant so much to Rob.

‘In particular, the Rugby League Family and the MND community have rallied around Rob to inspire him, thank you for your support.’

They concluded the touching tribute by saying: ‘He will continue to inspire us all every day. In a world full of adversity, we must dare to dream.’

The Leeds Rhinos expressed their ‘deep sadness’ at the news for their brave former team mate.

The rugby legend spent his entire club career with Leeds and made more than 400 appearances between 2001 and 2017.

Burrow was capped 15 times by England and played five Tests for Great Britain, but he was best known as part of the team that won the Super League in 2004.

It ended the club’s 32-year wait for a title, and he was then named Man of the Match in the Rhinos’ 2007 and 2011 achievements.

The team’s touching tribute said: ‘Rob inspired the entire country with his brave battle against Motor Neurone Disease (MND) since his diagnosis in December 2019. He passed away peacefully at Pinderfield’s Hospital near his home surrounded by his loving family after becoming ill earlier this week.

‘Burrow played his entire career with Leeds Rhinos and won every honour with the club as part of their golden generation. A hard working and dedicated player, his fearless performances made him one of the most respected players in the Rhinos ranks.’

Dan Walker posted on X in response to the sad news: ‘He was the little fella who made a massive impact on the pitch and an even bigger one off it. 

‘Rob Burrow taught us so much in the way he dealt with his MND diagnosis and inspired millions with his continued determination and desire to make a difference for others. Sending all my love to Lindsey and their kids, his sisters, his mum and dad and all those who will miss him so much.’

Prime Minister Rishi Sunak paid tribute: ‘Rob was an inspiration to everyone who met him or who heard his incredible story. I was honoured to spend some time with him last year. 

‘He drove a fundraising campaign that supports vital new research improving the care for others – not least through the creation of The Rob Burrow Centre for Motor Neurone Disease in Leeds. He leaves behind an amazing legacy and my thoughts are with his friends and family.’

Labour leader Keir Starmer called it ‘extremely sad’ and posted on X: ‘Rob leaves behind an incredible legacy in his work to raise awareness and advocate for those with Motor Neurone Disease. My thoughts are with his family and friends through this time.’

Piers Morgan called it ‘incredibly sad news’.

He posted on X: ‘A remarkable man who fought wretched Motor Neurone Disease with such courage, fortitude and determination. He raised so much money, and so much awareness, and helped so many other people. RIP Rob.’

BBC Breakfast editor Richard Frediani also posted to call Burrow ‘the greatest of men’ describing him as a ‘champion on and off the pitch’. 

The MND Association’s statement read: ‘In doing so much, he inspired support from so many. On the weekend of the Challenge Cup Final in October 2020, fans and supporters donated an incredible £70,000 to the MND Association. 

‘Just two months later, Rob’s former captain Kevin Sinfield CBE took on the first of four incredible challenges raising more than £7 million for MND charities, including the MND Association. 

‘Rob and Kev’s friendship made headline news around the world. Thousands of well-wishers, not just in rugby’s heartland, but across the country donated, took on fundraising challenges and pledged support in tribute to Rob’s bravery.

‘Rob’s contribution to rugby league and awareness of MND were recognised in the 2021 New Year’s Honours List when he was made an MBE and that same year Rob accepted the role of patron of the MND Association. Rob was subsequently awarded a CBE in the 2024 New Year’s Honours list.

‘It is testament to the strength of feeling people have for Rob that the support in his name has never wavered.

‘The MND Association is incredibly grateful to Rob and his family for helping to raise awareness of MND, and funds for the Association, by sharing the details of their journey and by inspiring so many people both within the MND community and the wider public.’

Burrow rose through the Leeds club’s Academy ranks to make his debut in 2001. 

In 2004, he was part of the Leeds team that ended a 32-year wait to win the Championship with victory in the Grand Final. 

It was the first of eight Grand Final wins for Burrow including winning the Man of the Match award in the 2007 and 2011 Old Trafford showpieces. The 2011 game included his breathtaking try that is still regarded as the greatest Grand Final try ever scored.

In total he made 492 appearances for the club, placing him in fifth in the club’s all-time list of career appearances. 

The rugby star won the Challenge Cup at Wembley in 2014 and 2015 as well as three World Club Challenges and three League Leaders Shields.

Touching tributes to the player on social media included one from the England Rugby account, which read: ‘Rest in Peace Rob’ with a prayer hands emoji and a broken heart.

Another called him a ‘hero’ and read: ‘He’ll never be forgotten. We’ll make sure of that.’  

A third read: ‘Hero. The definition of a legend. Thoughts with his family.’

Last month, Burrow paid tribute to his wife as he said he’s played some tough people in his rugby career, but no one is ‘as strong’ as Lindsey.

A married father of three young children, he was unable to talk but could articulate his thoughts through Eyegaze, a device which translates blinks into letters and then builds them into words on a screen.

The former captain of the Leeds Rhinos and member of the British rugby league teams paid tribute to his supportive wife Lindsey on BBC Breakfast.

Lindsey cared for Rob, their three children and works as an NHS physiotherapist. She has previously spoken about the ‘huge emotional and physical challenges’.

Her husband told BBC Breakfast: ‘I’m trying not to be soppy but some of the things that Lindsey does for me is proof I’ve found my one and only.

‘I’ve played with some strong players in my rugby career but no one is as strong a personality than Lindsey. I hope that will inspire people to be more like her…what a world that would be.’

In 2019, the Prince of Wales told him that ‘we’re all so proud of you’ while visiting Headingley Stadium in Leeds – to present the rugby legend with his CBE.

The royal also presented Rob with the medal – still in its box – as he lauded the former athlete’s legacy and efforts in campaigning.

‘Thank you and congratulations – for all the inspirational work you’ve done, Rob,’ Prince William said as the sporting icon was surrounded by his beaming wife and their children in a video shared by BBC Breakfast on X.

‘You’ve been amazing, you really have and everyone’s so proud of you.

‘We’ve all been following your case. You’ve changed so many people’s lives with MND with what you’ve done. We’re all so proud of you.’